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Tuesday 17 October 2017
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Requests and Responses

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  2. Click onto the reference number to read the request, review the response and to download any of the attached reports

  

FOI Reference
2963
Date Requested17/02/2016
Date Replied17/03/2016
CategoryClinical Services
Request & Response
Request
Thank you for your previous – if somewhat baffling – FOI response (2952) 
http://www.srft.nhs.uk/about-us/freedom-of-information/randr/?entryid34=58603&p=1 
 
 
I would like to make another FOI request in order to clarify certain aspects of the above-mentioned response. 
 
In the above-mentioned response, you state that the presence of the Summary Care Record opt-out code, 9Ndo, will not prohibit uploading of GP data to the SIR, but will result in data being “excluded for some research purposes”. 
 
• Could you kindly define what research purposes the uploaded data will be excluded from, and what research purposes the data will not be excluded from, in the presence of this code in the GP record? 
 
• Could you kindly tell me whether the Summary Care Record opt-out code, 9Ndo, will prohibit secondary processing of uploaded data  for non-research purposes (such as healthcare planning, audit, commissioning and commercial uses)? 
 
 
In the above-mentioned response, you state that the presence of the 9Nd1 opt-out code will not prohibit uploading of GP data to the SIR, but will result in data being “excluded for research purposes”. 
 
I take this to be all research purposes. 
 
• Could you kindly tell me whether the 9Nd1 opt-out code will prohibit secondary processing of uploaded data for non-research purposes (such as healthcare planning, audit, commissioning and commercial uses)? 
 
 
In the above-mentioned response, you state that the presence of the secondary uses opt-out, 9Nu0, will not prohibit uploading of GP data to the SIR, but will result in data being “excluded for some research purposes”. 
 
• Could you kindly define what research purposes the uploaded data will be excluded from, and what research purposes the data will not be excluded from, in the presence of this code in the GP record? 
 
• Could you kindly tell me whether the secondary uses opt-out code, 9Nu0, will prohibit secondary processing of uploaded data for non-research purposes (such as healthcare planning, audit, commissioning and commercial uses)? 
 
 
Finally, 
• Could you provide me with the fair processing information that you provide explaining these different choices that patients have for how their information is processed for “all” research, “some” research, and 
“non” research secondary purposes 
 
 
Response
• Could you kindly define what research purposes the uploaded data will be excluded from, and what research purposes the data will not be excluded from, in the presence of this code in the GP record? 
 
The data is used for the Salford Lung Study project. 
The data is not used for the Farsite Clinical Trial Recruitment system or generally for one-off data requests for research purposes. 
 
• Could you kindly tell me whether the Summary Care Record opt-out code, 9Ndo, will prohibit secondary processing of uploaded data  for non-research purposes (such as healthcare planning, audit, commissioning and commercial uses)? 
 
Generally, the 9Ndo does not prevent data being used for non-research purposes. However, the decision is made by the SIR ethical committee, called the SIR Board. 
 
 
In the above-mentioned response, you state that the presence of the 9Nd1 opt-out code will not prohibit uploading of GP data to the SIR, but will result in data being “excluded for research purposes”. 
 
I take this to be all research purposes. 
Yes. 
 
• Could you kindly tell me whether the 9Nd1 opt-out code will prohibit secondary processing of uploaded data for non-research purposes (such as healthcare planning, audit, commissioning and commercial uses)? 
 
Generally, the 9Nd1 opt out code does not prevent data being used for non-research purposes. However, the decision is made by the SIR ethical committee, called the SIR Board. 
 
In the above-mentioned response, you state that the presence of the secondary uses opt-out, 9Nu0, will not prohibit uploading of GP data to the SIR, but will result in data being “excluded for some research purposes”. 
 
• Could you kindly define what research purposes the uploaded data will be excluded from, and what research purposes the data will not be excluded from, in the presence of this code in the GP record? 
 
The data is used for the Salford Lung Study project. 
The data is not used for the Farsite Clinical Trial system or for general one-off data requests for research purposes. 
 
• Could you kindly tell me whether the secondary uses opt-out code, 9Nu0, will prohibit secondary processing of uploaded data for non-research purposes (such as healthcare planning, audit, commissioning and commercial uses)? 
 
Generally, the 9Nu0 opt out code does not prevent data being used for non-research purposes. However, the decision is made by the SIR ethical committee, called the SIR Board. 
 
Finally, 
• Could you provide me with the fair processing information that you provide explaining these different choices that patients have for how their information is processed for “all” research, “some” research, and 
“non” research secondary purposes 
 
The current consent model used is to give a choice to the patient to either have a Salford Integrated Record or to not have a Salford Integrated record.  If a patient decides to keep their Salford Integrated Record, they agree to have their data used for both clinical and research purposes. These choices are explained in the SIR Information Booklet :- 
http://www.salfordccg.nhs.uk/download.cfm?doc=docm93jijm4n2011.pdf&ver=2190 
 
The actual codes that are used to remove patient data from the Salford Integrated Record are 93C1 and 93C3. If these codes are used, the patient data is not uploaded to SIR and cannot be used for either clinical or research purposes. 
 
If data is used for research purposes, additional read codes are normally used for excluding patient data but these read codes can vary between the different requests. The decision to use additional read codes to exclude data is ultimately made by the SIR ethical committee, called the SIR Board. 
 
 
Attached Document


The Trust hopes applicants find these details helpful. However if you are unhappy with the response provided please let us know giving your reasons for believing we have not satisfied the requirements of the Freedom of Information Act. The matter will then be considered by the Freedom of Information officer who will respond in writing. This correspondence will include details of the Information Commissioner who you can contact if you remain dissatisfied with our response:

 

Freedom of Information Office

Salford Royal NHS Foundation Trust

Email:  FOIRequest@SRFT.nhs.uk

Telephone:  0161 206 1130